A real example of how dementia care is affected by poor financial aid

Patricia and Simon’s story 

Simon and his family were self-funding his care in a local care home, who were supporting him well with his dementia. However, in 2017 their funds began to run low and they were approaching the £23,250 threshold.

Confusion about financial aid

They approached Kent County Council who completed a full needs assessment. The council assured them that their case was being processed and they would pay towards the cost of Simon’s care, as well as providing back dated payments for the time they had waited. But Simon and his family were left with a great deal of uncertainty and confusion about the process.

Simon's deterioration

Within seven months of the assessment, Simon’s needs had deteriorated significantly. He had been in and out of hospital several times having fallen, requiring operations on his hip. At this stage he could no longer walk and had to be hoisted for all personal care. The assessment and his care plan were not reviewed following this significant change.

Change in medical needs

As Simon required complex medical support, the care home said they would not be able to support him any further, because their staff were not qualified or resourced.

In response, the council provided Simon’s family with a list of nursing homes in the area which could meet his complex needs. But he would now have to pay an additional £148 per week on top of what the council would pay towards his care.

Patricia wrote to the council trying to resolve the issues and find a care provider which could both meet Simon’s needs and was affordable. But, communication from the council was poor and she often received contradictory advice.

The council's failure to support

During this time Simon was receiving care and support that was not appropriate or enough to meet his needs and help him live well with dementia. He had been happy in the care home, but as his needs changed and his condition deteriorated, the council was unable to arrange the high-quality specialist care he needed.